Thursday, April 23, 2009

A Diagnosis At Last

Went back Tuesday for my follow up. My low count of infection fighting white cells had come from 0 up to 700 from my 8 hour IV treatment 2 weeks ago.
The cause of this is low cell count is T Cell Large Granular Lymphocytic Leukemia. It is a rare form, only 2-3% of the cases of lymphocytic Leukemias are this type. They do not know what causes it. But most people who have it also have Rheumatoid Arthritis, which I do have. Mine has been controlled and I have not had a flare up in 4 or 5 years.
Tuesday I got a shot that may bring my count up more. It is supposed to be 1500 to 2000. He does want mine at 1500. Was told I may have some bone pain from the shot, and I have. I guess it is supposed to rev up my bone marrow to produce more cells. I go back next Tuesday to see if my numbers are closer to normal
I guess if I have to have a disease, it might as well be a rare one.



Grammy said...

Wow you are special like me. I always have thing happen to me that are not normal too. So We are 2 peas in a pod. Big hug I am so glad it is helping.

Wendy said...

Hope things settle down for you. My hubby is like that. If it's rare, he'll have it.
Lots of hugs.