Sunday, June 11, 2017

SUMMER IS HERE

Water Aerobics began last Monday.  I was only able to go on Thursday.  This week I can go Monday Tuesday, and Friday. Have to work around Dr. appts.  Will get 4 days next 2 weeks and 5 last week of June.  We go through mid August.  I really feel good if I can go at least 3 days a week.

Went to RA dr. last week. She gave me a Cortizone shot in hip and it has taken away the faint aches I was having.  I have not had a flare up of a joint in awhile.  Hoping I can get my neutrophils up.  Have Lab Wednesday.

Jim is about the same. Keeps busy in back garage or visiting at Troys.  Memory is getting worse, and his legs are getting weaker.  He had a 2 hr Memory Test last month.  We go see the Dr. that ordered it July 12 and he will give us the results.  I do not see them being good.  He has not got lost, and still remembers who people are, so that is good.  Tried to BBQ hamburgers today, and messed them up and I took over.  There are things he used to do good that he gets confused now and messes them up.

I am trying to get out some, and not get agravated at him.  I know it is the disease, but sometimes he stresses me out.

Going to try to have a halfway good summer.


Wednesday, May 10, 2017

BAD TO WORSE

Guess I am going through a "feeling sorry for myself".  Jim's memory is getting worse, his judgement worse, and he is very irritable.  He thinks we are all against him and there is nothing wrong with him.

He has a plan to move to WV this summer into an apt his brother owns (upstairs), and thinks his brother is going to put in a gun store downstairs he can run.  He has been focused on this for a few weeks now.

He is not capable of paying bills and taking care of finances. He just spends money on junk.  He is not supposed to drive or have firearms around.  And he falls all the time.

I do not know if I feel sick because of my RA and LGL or am just depressed.

It is really hard to think that he is not even thinking of me or our children other than wanting to get away from us.

I know it is the disease, but I guess it is normal to feel like it is personal sometimes.

Sometimes I have to just cry.


Tuesday, April 4, 2017

BAD START TO A NEW YEAR

In January Jim had to go to the hospital as he was confused and having hallucinations. He was there a few days. Neurologist diagnosed him with Lewy Body Dementia. A combination of Parkinsons Disease and Alzheimers.  Progressing the most is his short term memory loss.

This has been devastating and I am having a problem dealing with it. So helpless.

Jackie is staying here and Robbin comes down everyweekend.

I am just existing day to day. Hoping I can stay on my feet with my RA and LGL.


Monday, December 5, 2016

PLAYING CATCH UP

November was not a good month, my RA flared up in my hands.  Also my Neutrophils were 0 last lab.  Get new lab Wed, hoping it is up at least a few numbers.

On the plus side for November Robbin brought all the fixings for Thanksgiving dinner and cooked it.  Marjie, Jackie, and Kati were here.  It was delicious.

Also on Friday, Jessica came down to put up my tree.  The 4 Embrey girls were brought by Bryant and Rachell so they could help her.  It looks great though it does not have anything under it yet.
I have taken a higher dose
of my RA meds for 3 weeks now, and the aches and pain from that are almost gone.  So hopefully December is going to be a good month.

Saturday, October 15, 2016

FALL BEGINS

Jim went with Tim and Debbie to WV this week.  The Annual Black Walnut Festival if going on. He seems to be feeling ok and having a good time.

Will be back late Sun night or Monday.  Hope he continues to use his cane to keep him from falling so much.  His sister has made him use it out there.

I have been doing some cleaning this week.  Did not get all done that I wanted to, but feels better in most of the house.

Poor Charlie is really missing Jim. He has followed me everywhere in the house, and layed around where I was working.  Dallas looks for him out the window, but he is dealing with him being gone better than Charlie.  They both stay right with him when he is here.

Going to Cheddars tomorrow for lunch with Jackie, Marjie, Robbin, and Kyle.  I have never been there.  Jim is not much for "wait to be seated" places.  Looking forwarding to endingmy Staycation with a get together with my girls.

Hoping for a good Fall and Winter with good health for both of us.



Thursday, September 15, 2016

WANT TO FEEL BETTER.....

Had a few bad weeks with my RA.  Got a cortisone shot and it has helped. Hope it lasts awhile. Dr. said it does. My neutrophils have stayed low, but saw Dr. S today and he says I have enough to fight infections, so I do not have to go back on the chemo pills to suppress immune system.

Am hoping to feel better. Have had no energy, but felt better past few days.

Tuesday, August 16, 2016

On July 30th we celebrated Jim's 80th birthday with a BBQ.  All the kids and grandkids were here and most of the Great Grankids

In addition we surprised him with his brother Bill and Sandy, Sister Linda and Stu, and Monica from WV

We all had a great time and the WV relatives stayed til Monday

We had tons of food and a water slide for the kids.

A good time was had by all.