Monday, July 24, 2017

MY SUMMER OF DISCONTENT

Jim was taken to BCMH July 3 by ambulance late night.  Tests showed he had a very high white count.  They had to find out where infection was.  Found in gallbladder.  Had to have drain tube put in.  Then they discovered he had fluid on lungs.  Then his heart rate went way high, and was irregular.  And his legs swelled hugh.

Thurs, July 20th drain had come out and needed replaced.  Was transported to St Joseph that afternoon. They replaced the tube Friday, he has fluid on lungs, and legs still swollen, but coming down some. They have been walking him some.  If they find out tomorrow, 25th, his lungs look good, he will be transported back to Butler for skilled nursing and rehab for a couple weeks.

He is very discouraged as they tell him every day, he will be there at least one more day.

Hope he can get back to Butler and begin rehab tomorrow.

Thursday, June 29, 2017

GOOD INTENTIONS LEFT BEHIND.

I keep saying I am going to have more patience with Jim.  It works for awhile.  I thought I had been doing pretty good for awhile and tonight I blew it.

I have quit saying anything about him being sick or having a disease or his memory.  He does not want to hear that and I understand.

He is falling more and more.  Hope he does not break a bone or hit his head.  

I guess I will just have to keep starting over and over with my patience.

Sunday, June 11, 2017

SUMMER IS HERE

Water Aerobics began last Monday.  I was only able to go on Thursday.  This week I can go Monday Tuesday, and Friday. Have to work around Dr. appts.  Will get 4 days next 2 weeks and 5 last week of June.  We go through mid August.  I really feel good if I can go at least 3 days a week.

Went to RA dr. last week. She gave me a Cortizone shot in hip and it has taken away the faint aches I was having.  I have not had a flare up of a joint in awhile.  Hoping I can get my neutrophils up.  Have Lab Wednesday.

Jim is about the same. Keeps busy in back garage or visiting at Troys.  Memory is getting worse, and his legs are getting weaker.  He had a 2 hr Memory Test last month.  We go see the Dr. that ordered it July 12 and he will give us the results.  I do not see them being good.  He has not got lost, and still remembers who people are, so that is good.  Tried to BBQ hamburgers today, and messed them up and I took over.  There are things he used to do good that he gets confused now and messes them up.

I am trying to get out some, and not get agravated at him.  I know it is the disease, but sometimes he stresses me out.

Going to try to have a halfway good summer.


Wednesday, May 10, 2017

BAD TO WORSE

Guess I am going through a "feeling sorry for myself".  Jim's memory is getting worse, his judgement worse, and he is very irritable.  He thinks we are all against him and there is nothing wrong with him.

He has a plan to move to WV this summer into an apt his brother owns (upstairs), and thinks his brother is going to put in a gun store downstairs he can run.  He has been focused on this for a few weeks now.

He is not capable of paying bills and taking care of finances. He just spends money on junk.  He is not supposed to drive or have firearms around.  And he falls all the time.

I do not know if I feel sick because of my RA and LGL or am just depressed.

It is really hard to think that he is not even thinking of me or our children other than wanting to get away from us.

I know it is the disease, but I guess it is normal to feel like it is personal sometimes.

Sometimes I have to just cry.


Tuesday, April 4, 2017

BAD START TO A NEW YEAR

In January Jim had to go to the hospital as he was confused and having hallucinations. He was there a few days. Neurologist diagnosed him with Lewy Body Dementia. A combination of Parkinsons Disease and Alzheimers.  Progressing the most is his short term memory loss.

This has been devastating and I am having a problem dealing with it. So helpless.

Jackie is staying here and Robbin comes down everyweekend.

I am just existing day to day. Hoping I can stay on my feet with my RA and LGL.


Monday, December 5, 2016

PLAYING CATCH UP

November was not a good month, my RA flared up in my hands.  Also my Neutrophils were 0 last lab.  Get new lab Wed, hoping it is up at least a few numbers.

On the plus side for November Robbin brought all the fixings for Thanksgiving dinner and cooked it.  Marjie, Jackie, and Kati were here.  It was delicious.

Also on Friday, Jessica came down to put up my tree.  The 4 Embrey girls were brought by Bryant and Rachell so they could help her.  It looks great though it does not have anything under it yet.
I have taken a higher dose
of my RA meds for 3 weeks now, and the aches and pain from that are almost gone.  So hopefully December is going to be a good month.

Saturday, October 15, 2016

FALL BEGINS

Jim went with Tim and Debbie to WV this week.  The Annual Black Walnut Festival if going on. He seems to be feeling ok and having a good time.

Will be back late Sun night or Monday.  Hope he continues to use his cane to keep him from falling so much.  His sister has made him use it out there.

I have been doing some cleaning this week.  Did not get all done that I wanted to, but feels better in most of the house.

Poor Charlie is really missing Jim. He has followed me everywhere in the house, and layed around where I was working.  Dallas looks for him out the window, but he is dealing with him being gone better than Charlie.  They both stay right with him when he is here.

Going to Cheddars tomorrow for lunch with Jackie, Marjie, Robbin, and Kyle.  I have never been there.  Jim is not much for "wait to be seated" places.  Looking forwarding to endingmy Staycation with a get together with my girls.

Hoping for a good Fall and Winter with good health for both of us.